Einat Engel-Haber, Irina Radomislensky, Arnona Ziv, Amiram Catz, Avi Ohry, Israel Dudkiewicz, Shlomo Noy and Gabi Zeilig
Background: Given the severe consequences of spinal cord injuries (SCI), it is important to store high-quality medical and functional data. Until recently, there was no SCI rehabilitation registry in Israel.
Objectives: To describe the process of initiating a rehabilitation registry for individuals with SCI in Israel and to provide a descriptive analysis of data from a single rehabilitation center.
Setting: The department of neurological rehabilitation and Spinal Cord Rehabilitation Unit at Sheba Medical Center, Israel; The Israel National Trauma Registry (INTR) at the Gertner Institute.
Methods: Individuals with traumatic and non-traumatic SCI admitted to the Spinal Cord Rehabilitation Unit at Sheba between January 2012 and December 2017 were included. Data collection was designed in accordance with the International Classification of Functioning, Disability and Health (ICF) and based on International SCI Data Sets. Data from the INTR and rehabilitation settings were matched.
Results: The first phase of the Israeli Spinal Cord Rehabilitation Registry (ISCIR) was completed at Sheba. Retrospective data from 408 individuals with SCI were analyzed. Among the 160 individuals with an acute traumatic SCI, traffic accidents were the leading cause of injury, followed by falls. 47% had tetraplegia and the average length of stay was 148 days. 144 individuals had a non-traumatic SCI, mostly due to degenerative disease, with an average length of stay of 71 days. The remaining 104 individuals hospitalized during that period had chronic SCI.
Conclusion: The current work demonstrated the feasibility of creating a SCI rehabilitation registry in Israel. In the near future, the data set will be extended and additional rehabilitation centres will join the registry.
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