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2018 年欧洲护理大会:对帕金森病患者及其配偶护理人员下尿路症状体验的十年研究结果 - Joanne P Robinson,美国罗格斯大学

Abstract

Joanne P Robinson1?Helene Moriarty2?Christine W Bradway3 ? Lisette Bunting-Perry4

2018 ????????????????????????????????????? - Joanne P Robinson????????

Joanne P Robinson 1?Helene Moriarty 2?Christine W Bradway 3? Lisette Bunting-Perry 4

1.???????

2????????

3.?????????

4???????

 

 

?????????? (LUTS) ????? (PD) ????????????????????????????????????????????????????? PD ??????????? LUTS ???????????

 

???????“???????”???????????????????????????????????????????????????????????N=271 ???????????????N=88 ??? PD ? LUTS ???????????????????N=11??????N=15????????????????????????????????????????????????????

Findings: Most patient participants had mild PD symptoms, yet UI prevalence was 24% and 92% in retrospective and cross-sectional studies respectively. Patients had limited awareness of the neurologic contributions of PD to LUTS. Embarrassment, bother, and diminished self-esteem jeopardized their relationships, intimacy, social life, and travel. Spouses understood that PD caused LUTS and empathized with their husbands; however, they still experienced bother and emotional distress related to LUTS and coped primarily by “dealing with it.” Patients and spouses relied mostly on do-it-yourself strategies to manage LUTS – some ingenious and some ill-advised. Conclusions: LUTS may be highly prevalent in the early symptomatic phase of PD, negatively affects patients and families, and often escapes the attention of providers. We recommend: screening patients and families for LUTS issues in all stages of PD; inquiring about burden and management strategies; and referring to urology providers as needed. LUTS treatment deserves designation as a priority area for PD research.

 

Data Collection Instrument and Procedure

 

A generally subjective review survey was utilized to gather the information. The survey comprised of four sections. The initial segment of the poll comprised of close-finished inquiries that were utilized to catch guardians' and patients' segment data. The subsequent part contained open-finished inquiries identified with PD, PD patients, and their consideration. Inquiries in the third part were Likert-type addresses that requested that the members assess (rate) upholds accessible to them in thinking about the patient under their consideration. The inquiries were replied on a ten-point scale going from 1 (extremely low) to 10 (exceptionally high). The fourth part had two open-finished inquiries that posed to the members to add any data or thought esteemed applicable to them.

 

The survey was managed to members with the assistance of PPSO-E staff in a lounge area where guardians stayed when the patients they go with were going to preparing. The poll was managed to five of the members who can't peruse and write in a type of meeting by the specialist. The analyst made an honest effort to inspire however much data as could be expected from these members. Investment in this exploration was totally intentional and oral assent was acquired from every member. The motivation behind the exploration was disclosed to the members both in the survey and orally.

 

The poll was arranged and managed in Amharic to permit the members' most extreme comprehension of the inquiries and give more extravagant and precise information. Members were given sufficient opportunity and asked and urged orally to give as much data they were agreeable to give.

 

Conclusion

 

????????????? PD ??????????????????? 20 ?????????????????????????????????????????????? PD ??????? PD ?????????????????????????????????????????????? PD ??/?????????????????????????????????????????????????????????????? PD ?????????????????

 

???????????????????????? 20 ??????????????????????????????????????????????????????????????????? PD ?????????????????????? PD ??????????????????????????????????????????????????????????

 

 

 

 

 

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