创伤与治疗杂志

Rare diseases have taken a toll on the health of patients and their families mostly contributing to the shallow knowledge in order to explain the
complexity of the situation to the physician; thereby ending up in late diagnosis and misdiagnosis. The aim of this study was to report the training
needs in the general public health system within the diagnosis, treatment and monitoring of patients with rare diseases and to create awareness
so as to make a better place for such uncommon ailments.

Fifty-two percent of people detained in state jails and 63% of people in government penitentiaries are guardians of minor kids and a large number of them (22% of the offspring of state prisoners and 16% of the offspring of administrative detainees) are younger than 5 years. Exploration has shown that kids who have been presented to capture of a relative are fundamentally bound to have been the casualties of, or observer to, a more extensive scope of brutal and peaceful wrongdoings in their homes including youngster abuse or the utilization/selling of illicit substances.

From policymaking and research point of view, our aim is to compare data of patients with severe traumatic brain injury (TBI) with developed
settings, where health care facilities are much enhanced as compared to developing settings. In this retrospective study, we described and
compared demographic, clinical, secondary insult related characteristics, and outcomes at 6-months (based on Glasgow outcome scale) of our
patients with severe TBI; based on emergency department Glasgow coma scale, admitted to neurosurgery Intensive Care Unit at Jai Prakash
Narayan Apex Trauma Centre (JPNATC), AIIMS, New Delhi, during May 2010–July 2012; with famous studies from developed settings using
descriptive statistics. We found that there is a huge burden of young patients, mostly males with severe TBI in India as compared to developed
settings. Follow-up data for 6-months outcome were very much lesser and outcome as death was in high proportion as compared to developed
settings. In case of severe TBI, this information can be valuable in formulation of policies and programmes at centre/national/international level,
increasing public awareness, developing new action plans.